UK Stroke Forum 2025 | Enhancing the design of stroke studies: registry-based trials
William Whiteley, BM, BCh, MA, MSc, PhD, FRCP, The University of Edinburgh, Edinburgh, UK, discusses the potential of utilizing NHS-collected data to enhance the design of stroke studies. Prof. Whiteley highlights the importance of creating efficient data pipelines to facilitate researchers in conducting such studies as cheaply and effectively as possible. This interview took place at the UK Stroke Forum (UKSF) 2025 Conference in Aberdeen, UK.
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Transcript
So I’m the director of the Stroke Association’s Stroke Data Catalyst and there we’ve been looking at how to use the really valuable information collected by the NHS to improve the design of stroke studies. One potential thing we could do is use the data collected by the national audits both in Scotland and England, to start to think about how to do registry-based trials. Registry-based trials are much cheaper and allow one to look at hospital-level interventions, things that might improve quality of care...
So I’m the director of the Stroke Association’s Stroke Data Catalyst and there we’ve been looking at how to use the really valuable information collected by the NHS to improve the design of stroke studies. One potential thing we could do is use the data collected by the national audits both in Scotland and England, to start to think about how to do registry-based trials. Registry-based trials are much cheaper and allow one to look at hospital-level interventions, things that might improve quality of care. So there are many of those on the horizon, some around intracerebral hemorrhage, some around ischemic stroke, but really what we want to do is to create the data pipelines to allow researchers to do those studies as cheaply and as effectively as possible.
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