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ECTRIMS 2023 | Patient-generated data in MS progression monitoring

Paola Zaratin, PhD, Italian Multiple Sclerosis Society, Genoa, Italy, discusses the increasing importance of integrating patients’ experiential knowledge into scientific frameworks for a comprehensive understanding of multiple sclerosis (MS) progression. Dr Zaratin emphasizes the role of patient-generated measurements, notably patient-reported outcomes. With several studies indicating advancements in these measurements, the Global Patient-Reported Outcome for Multiple Sclerosis initiative stands out as a remarkable endeavor in this arena. This initiative focuses on using digital technologies, recognizing them as catalysts for this paradigm shift, allowing accurate monitoring of changes and silent progressions over time. Dr Zaratin further underscores the significance of actively involving MS patients in the Global Pathway to Cures initiative, as every MS patient has unique experiences. The pursuit of personalized medicine in MS requires such engagement, and major MS societies, as mentioned, have pledged their support. This interview took place at the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) Congress 2023 in Milan, Italy.

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