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MDS 2023 | Transparency and regulation in transplant studies in movement disorders

Cindy Towns, MBChB, PhD, Wellington Hospital, Wellington, New Zealand, discusses the crucial need for transparency and regulation in stem cell therapy and transplant studies. DR Towns highlights the importance of providing patients with full disclosure of information, particularly in cases where their personal beliefs may conflict with certain medical practices, emphasizing the significance of respecting patients’ autonomy and their right to decline participation. Healthcare professionals must be transparent about the source of medical advancements, the evidence base, efficacy, safety, and the necessary steps involved. Additionally, there is a necessity for robust regulations and oversight, especially when it comes to for-profit businesses making unproven claims, to protect patients and prevent exploitation in the healthcare industry. This interview took place at the 2023 International Congress of Parkinson’s Disease and Movement Disorders in Copenhagen, Denmark.

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