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SLEEP 2026 | The role of care partners in managing central disorders of hypersomnolence

Kelsey Biddle, MD, Brigham and Women’s Hospital, Boston, MA, discusses the value of involving family members and care partners in the management of central disorders of hypersomnolence. She explains how care partners can provide important clinical insights, support shared decision-making, and help patients better understand their diagnosis and treatment. This interview took place at the 40th annual meeting of the Associated Professional Sleep Societies (APSS) in Baltimore, MD.

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Transcript

You know, I think there are a lot of populations where it’s very normal, and just a part of clinical care, to involve family. In pediatrics in general, in psychiatry, getting collateral information and collaborating with family members is part of patient-centered care. And really thinking about how we bring that into adult clinical care. I think the way to start that is, whether you’re a clinician or somebody that works with patients, is just to broach the conversation that some people really benefit from having a loved one, a parent, or a partner present during clinical visits or other conversations, particularly when changes or a new diagnosis are being discussed...

You know, I think there are a lot of populations where it’s very normal, and just a part of clinical care, to involve family. In pediatrics in general, in psychiatry, getting collateral information and collaborating with family members is part of patient-centered care. And really thinking about how we bring that into adult clinical care. I think the way to start that is, whether you’re a clinician or somebody that works with patients, is just to broach the conversation that some people really benefit from having a loved one, a parent, or a partner present during clinical visits or other conversations, particularly when changes or a new diagnosis are being discussed. And sort of empowering your patients to bring that care partner into the room, or virtual room, to take part in those conversations, as well as to learn more about these conditions and how they can be most supportive.

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