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MDS 2022 | In-home remote assessment of the MDS-UPDRS Part III: development a guide for patients

Michelle Tosin, PhD, MSN, RN, Rush University Medical Center, Chicago, IL, describes the development and validation of a culturally-sensitive guide for the remote administration of the Movement Disorder Society Unified Parkinson’s Disease Rating Scale (MDS-UPDRS) Part III. A 5-center international study that included four phases was conducted. The first stage was the conceptualization of the guide and development of the prototype using a consensus approach, followed by cognitive pretesting and Translation/back translation to non-English languages (Brazilian Portuguese, Castilian Spanish, Traditional Chinese). The last phase included the evaluation of patient usability and degree of completion of the synchronous remote motor exam. Overall, the guide developed met usability standards and allowed for the successful completion of its remote administration. This interview took place at the 2022 International Congress of Parkinson’s Disease and Movement Disorders in Madrid, Spain.

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